{"id":992793,"date":"2025-05-21T12:09:12","date_gmt":"2025-05-21T09:09:12","guid":{"rendered":"http:\/\/www.ifet.gr\/?p=992793"},"modified":"2026-03-24T14:59:51","modified_gmt":"2026-03-24T12:59:51","slug":"the-rare-disease-association-of-greece-era-introduces-for-the-first-time-in-greece-two-innovative-tools-that-mark-the-essential-support-and-comprehensive-information-of-the-rare-disease-community","status":"publish","type":"post","link":"https:\/\/www.ifet.gr\/en\/the-rare-disease-association-of-greece-era-introduces-for-the-first-time-in-greece-two-innovative-tools-that-mark-the-essential-support-and-comprehensive-information-of-the-rare-disease-community\/","title":{"rendered":"The Rare Disease Association of Greece (ERA) introduces, for the first time in Greece, two innovative tools that mark the essential support and comprehensive information of the Rare Disease community."},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"992793\" 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fa-caret-down\" aria-hidden=\"true\"><\/i><\/span><\/a>\n<ul class=\"sub-menu elementor-nav-menu--dropdown\">\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993061\"><a href=\"https:\/\/www.ifet.gr\/en\/purchasing-and-procurement-department\/\" class=\"elementor-sub-item\">Purchasing and Procurement Department<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993062\"><a href=\"https:\/\/www.ifet.gr\/en\/production-unit-2\/\" class=\"elementor-sub-item\">Production Unit<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993063\"><a href=\"https:\/\/www.ifet.gr\/en\/research-laboratory\/\" class=\"elementor-sub-item\">Research Laboratory<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993064\"><a href=\"https:\/\/www.ifet.gr\/en\/irradiation-unit-2\/\" class=\"elementor-sub-item\">Irradiation Unit<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992468\"><a href=\"https:\/\/www.ifet.gr\/en\/pharmacovigilance\/\" class=\"elementor-sub-item\">Pharmacovigilance<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992471\"><a href=\"https:\/\/www.ifet.gr\/en\/distribution-center\/\" class=\"elementor-sub-item\">Distribution Center<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993065\"><a href=\"https:\/\/www.ifet.gr\/en\/quality-assurance-2\/\" class=\"elementor-sub-item\">Quality Assurance<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993066\"><a href=\"https:\/\/www.ifet.gr\/en\/pharmacovigilance-2\/\" class=\"elementor-sub-item\">Pharmacovigilance<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-custom menu-item-object-custom menu-item-993819\"><a href=\"https:\/\/ikf.tcloudapp.net\/\" class=\"elementor-sub-item\">List of medicines<\/a><\/li>\n<\/ul>\n<\/li>\n<li class=\"menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-992474\"><a href=\"#\" class=\"elementor-item elementor-item-anchor\">New Announcements<span class=\"sub-arrow\"><i class=\"fas fa-caret-down\" aria-hidden=\"true\"><\/i><\/span><\/a>\n<ul class=\"sub-menu elementor-nav-menu--dropdown\">\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992476\"><a href=\"https:\/\/www.ifet.gr\/en\/job-positions\/\" class=\"elementor-sub-item\">Job Positions<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993067\"><a href=\"https:\/\/www.ifet.gr\/en\/press-releases-2\/\" class=\"elementor-sub-item\">Press Releases<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993068\"><a href=\"https:\/\/www.ifet.gr\/en\/announcements-ifet-m-a-e-competitions\/\" class=\"elementor-sub-item\">Announcements \u2013 IFET M.A.E. Competitions<\/a><\/li>\n<\/ul>\n<\/li>\n<li class=\"menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-992477\"><a href=\"#\" class=\"elementor-item elementor-item-anchor\">Contact<span class=\"sub-arrow\"><i class=\"fas fa-caret-down\" aria-hidden=\"true\"><\/i><\/span><\/a>\n<ul class=\"sub-menu elementor-nav-menu--dropdown\">\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992478\"><a href=\"https:\/\/www.ifet.gr\/en\/contact\/\" class=\"elementor-sub-item\">Contact<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992479\"><a href=\"https:\/\/www.ifet.gr\/en\/frequently-asked-questions\/\" class=\"elementor-sub-item\">Frequently Asked Questions<\/a><\/li>\n<\/ul>\n<\/li>\n<\/ul>\t\t\t<\/nav>\n\t\t\t\t\t<div class=\"elementor-menu-toggle\" role=\"button\" tabindex=\"0\" aria-label=\"Menu Toggle\" aria-expanded=\"false\">\n\t\t\t<i aria-hidden=\"true\" 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menu-item-object-custom menu-item-992460\"><a href=\"http:\/\/www.ifet.gr\/profil\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Profile<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992461\"><a href=\"https:\/\/www.ifet.gr\/en\/vision-2\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Vision<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992462\"><a href=\"https:\/\/www.ifet.gr\/en\/mission\/\" class=\"elementor-sub-item\" tabindex=\"-1\">\u039cission<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992463\"><a href=\"https:\/\/www.ifet.gr\/en\/objectives\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Objectives<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992464\"><a href=\"https:\/\/www.ifet.gr\/en\/values-2\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Values<\/a><\/li>\n\t<li 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class=\"elementor-sub-item\" tabindex=\"-1\">Purchasing and Procurement Department<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993062\"><a href=\"https:\/\/www.ifet.gr\/en\/production-unit-2\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Production Unit<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993063\"><a href=\"https:\/\/www.ifet.gr\/en\/research-laboratory\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Research Laboratory<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993064\"><a href=\"https:\/\/www.ifet.gr\/en\/irradiation-unit-2\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Irradiation Unit<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992468\"><a href=\"https:\/\/www.ifet.gr\/en\/pharmacovigilance\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Pharmacovigilance<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992471\"><a href=\"https:\/\/www.ifet.gr\/en\/distribution-center\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Distribution Center<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993065\"><a href=\"https:\/\/www.ifet.gr\/en\/quality-assurance-2\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Quality Assurance<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993066\"><a href=\"https:\/\/www.ifet.gr\/en\/pharmacovigilance-2\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Pharmacovigilance<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-custom menu-item-object-custom menu-item-993819\"><a href=\"https:\/\/ikf.tcloudapp.net\/\" class=\"elementor-sub-item\" tabindex=\"-1\">List of medicines<\/a><\/li>\n<\/ul>\n<\/li>\n<li class=\"menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-992474\"><a href=\"#\" class=\"elementor-item elementor-item-anchor\" tabindex=\"-1\">New Announcements<span class=\"sub-arrow\"><i class=\"fas fa-caret-down\" aria-hidden=\"true\"><\/i><\/span><\/a>\n<ul class=\"sub-menu elementor-nav-menu--dropdown\">\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992476\"><a href=\"https:\/\/www.ifet.gr\/en\/job-positions\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Job Positions<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993067\"><a href=\"https:\/\/www.ifet.gr\/en\/press-releases-2\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Press Releases<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-993068\"><a href=\"https:\/\/www.ifet.gr\/en\/announcements-ifet-m-a-e-competitions\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Announcements \u2013 IFET M.A.E. Competitions<\/a><\/li>\n<\/ul>\n<\/li>\n<li class=\"menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-992477\"><a href=\"#\" class=\"elementor-item elementor-item-anchor\" tabindex=\"-1\">Contact<span class=\"sub-arrow\"><i class=\"fas fa-caret-down\" aria-hidden=\"true\"><\/i><\/span><\/a>\n<ul class=\"sub-menu elementor-nav-menu--dropdown\">\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992478\"><a href=\"https:\/\/www.ifet.gr\/en\/contact\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Contact<\/a><\/li>\n\t<li class=\"menu-item menu-item-type-post_type menu-item-object-page menu-item-992479\"><a href=\"https:\/\/www.ifet.gr\/en\/frequently-asked-questions\/\" class=\"elementor-sub-item\" tabindex=\"-1\">Frequently Asked Questions<\/a><\/li>\n<\/ul>\n<\/li>\n<\/ul>\t\t\t<\/nav>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-eb4b9fa e-con-full e-flex e-con e-parent\" data-id=\"eb4b9fa\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[],&quot;background_background&quot;:&quot;video&quot;,&quot;background_video_link&quot;:&quot;https:\\\/\\\/www.youtube.com\\\/watch?v=Tr3k4JdJfJI&quot;,&quot;background_play_on_mobile&quot;:&quot;yes&quot;,&quot;background_privacy_mode&quot;:&quot;yes&quot;}\">\n\t\t<div class=\"elementor-background-video-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-video-embed\" role=\"presentation\"><\/div>\n\t\t\t\t\t\t<\/div>\t\t<\/div>\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-620e3e1 e-flex e-con-boxed e-con e-parent\" data-id=\"620e3e1\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-259b8bc elementor-widget elementor-widget-spacer\" data-id=\"259b8bc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-63d328f elementor-widget elementor-widget-heading\" data-id=\"63d328f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">The Rare Disease Association of Greece (ERA) introduces, for the first time in Greece, two innovative tools that mark the essential support and comprehensive information of the Rare Disease community.<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-2f0f332 e-flex e-con-boxed e-con e-parent\" data-id=\"2f0f332\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e259638 elementor-widget elementor-widget-spacer\" data-id=\"e259638\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-74b0e0b e-flex e-con-boxed e-con e-parent\" data-id=\"74b0e0b\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ae3e4d7 elementor-widget elementor-widget-spacer\" data-id=\"ae3e4d7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-9710ff7 e-flex e-con-boxed e-con e-parent\" data-id=\"9710ff7\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"vamtam-has-theme-widget-styles elementor-element elementor-element-8c6fea2 elementor-widget elementor-widget-text-editor\" data-id=\"8c6fea2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Access and Permissions Guides<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"vamtam-has-theme-widget-styles elementor-element elementor-element-bab8440 elementor-widget elementor-widget-text-editor\" data-id=\"bab8440\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p data-start=\"53\" data-end=\"348\">The guides \u201cGuide to Accessing Therapies and Orphan Drugs for Rare Diseases\u201d and \u201cGuide to Rights and Social Benefits for People Living with Rare Diseases\u201d constitute a comprehensive and structured source of information, eliminating the confusion and complexity caused by fragmented information.<\/p><p data-start=\"350\" data-end=\"733\">The \u201cGuide to Accessing Therapies and Orphan Drugs\u201d was developed in collaboration with the Ministry of Health, the National Organization for Medicines (EOF), the National Organization for Healthcare Services Provision (EOPYY), IFET S.A., and the Hellenic Market Access Association (ELEMA), offering a clear mapping of the process for accessing innovative therapies and orphan drugs.<\/p><p data-start=\"735\" data-end=\"995\">The \u201cGuide to Rights and Social Benefits\u201d, created by specialized Social Scientists with the support of the Ministry of Health and OPEKA, provides valuable information on the social benefits and rights concerning patients with rare diseases and their families.<\/p><p data-start=\"997\" data-end=\"1279\">Although the guides address the specialized needs of rare disease patients, their value extends to the entire patient community, as they include useful information and tools that promote equity and support within the healthcare system, creating a positive impact on a broader scale.<\/p><p data-start=\"1281\" data-end=\"1483\">As dynamic tools, the guides reflect the applicable procedures and regulatory framework at the time of their publication (June 2024) and will be adapted and updated in line with any legislative changes.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-93004b2 e-con-full e-flex e-con e-child\" data-id=\"93004b2\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b98e66f elementor-widget elementor-widget-image\" data-id=\"b98e66f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"768\" height=\"432\" src=\"https:\/\/www.ifet.gr\/wp-content\/uploads\/2026\/01\/banner_odigos-prosvasis_no_sponsor-768x432.jpg\" class=\"attachment-medium_large size-medium_large wp-image-992792\" alt=\"\" srcset=\"https:\/\/www.ifet.gr\/wp-content\/uploads\/2026\/01\/banner_odigos-prosvasis_no_sponsor-768x432.jpg 768w, https:\/\/www.ifet.gr\/wp-content\/uploads\/2026\/01\/banner_odigos-prosvasis_no_sponsor-300x169.jpg 300w, https:\/\/www.ifet.gr\/wp-content\/uploads\/2026\/01\/banner_odigos-prosvasis_no_sponsor-1024x576.jpg 1024w, https:\/\/www.ifet.gr\/wp-content\/uploads\/2026\/01\/banner_odigos-prosvasis_no_sponsor-1536x864.jpg 1536w, https:\/\/www.ifet.gr\/wp-content\/uploads\/2026\/01\/banner_odigos-prosvasis_no_sponsor.jpg 1600w\" sizes=\"(max-width: 768px) 100vw, 768px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"vamtam-has-theme-widget-styles elementor-element elementor-element-55bbf50 elementor-widget elementor-widget-text-editor\" data-id=\"55bbf50\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/rarediseasesgreece.gr\/odigos-prosvasis\/\"><strong>Access Guide to Therapies and Orphan Drugs for Rare Diseases<\/strong><\/a>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-2728163 e-flex e-con-boxed e-con e-parent\" data-id=\"2728163\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>\u0399\u03bd\u03c3\u03c4\u03b9\u03c4\u03bf\u03cd\u03c4\u03bf \u03a6\u03b1\u03c1\u03bc\u03b1\u03ba\u03b5\u03c5\u03c4\u03b9\u03ba\u03ae\u03c2 \u0388\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 &amp; \u03a4\u03b5\u03c7\u03bd\u03bf\u03bb\u03bf\u03b3\u03af\u03b1\u03c2 \u039c.\u0391.\u0395. The Rare Disease Association of Greece (ERA) introduces, for the first time in Greece, two innovative tools that mark the essential support and comprehensive information of the Rare Disease community. Access and Permissions Guides The guides \u201cGuide to Accessing Therapies and Orphan Drugs for Rare Diseases\u201d and \u201cGuide to&#8230;<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"rs_blank_template":"","rs_page_bg_color":"","slide_template_v7":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-992793","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The Rare Disease Association of Greece (ERA) introduces, for the first time in Greece, two innovative tools that mark the essential support and comprehensive information of the Rare Disease community. - \u0399\u03bd\u03c3\u03c4\u03b9\u03c4\u03bf\u03cd\u03c4\u03bf \u03a6\u03b1\u03c1\u03bc\u03b1\u03ba\u03b5\u03c5\u03c4\u03b9\u03ba\u03ae\u03c2 \u0388\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 &amp; \u03a4\u03b5\u03c7\u03bd\u03bf\u03bb\u03bf\u03b3\u03af\u03b1\u03c2 \u0391\u0395<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ifet.gr\/en\/the-rare-disease-association-of-greece-era-introduces-for-the-first-time-in-greece-two-innovative-tools-that-mark-the-essential-support-and-comprehensive-information-of-the-rare-disease-community\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Rare Disease Association of Greece (ERA) introduces, for the first time in Greece, two innovative tools that mark the essential support and comprehensive information of the Rare Disease community. - \u0399\u03bd\u03c3\u03c4\u03b9\u03c4\u03bf\u03cd\u03c4\u03bf \u03a6\u03b1\u03c1\u03bc\u03b1\u03ba\u03b5\u03c5\u03c4\u03b9\u03ba\u03ae\u03c2 \u0388\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 &amp; \u03a4\u03b5\u03c7\u03bd\u03bf\u03bb\u03bf\u03b3\u03af\u03b1\u03c2 \u0391\u0395\" \/>\n<meta property=\"og:description\" content=\"\u0399\u03bd\u03c3\u03c4\u03b9\u03c4\u03bf\u03cd\u03c4\u03bf \u03a6\u03b1\u03c1\u03bc\u03b1\u03ba\u03b5\u03c5\u03c4\u03b9\u03ba\u03ae\u03c2 \u0388\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 &amp; \u03a4\u03b5\u03c7\u03bd\u03bf\u03bb\u03bf\u03b3\u03af\u03b1\u03c2 \u039c.\u0391.\u0395. The Rare Disease Association of Greece (ERA) introduces, for the first time in Greece, two innovative tools that mark the essential support and comprehensive information of the Rare Disease community. Access and Permissions Guides The guides \u201cGuide to Accessing Therapies and Orphan Drugs for Rare Diseases\u201d and \u201cGuide to...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.ifet.gr\/en\/the-rare-disease-association-of-greece-era-introduces-for-the-first-time-in-greece-two-innovative-tools-that-mark-the-essential-support-and-comprehensive-information-of-the-rare-disease-community\/\" \/>\n<meta property=\"og:site_name\" content=\"\u0399\u03bd\u03c3\u03c4\u03b9\u03c4\u03bf\u03cd\u03c4\u03bf \u03a6\u03b1\u03c1\u03bc\u03b1\u03ba\u03b5\u03c5\u03c4\u03b9\u03ba\u03ae\u03c2 \u0388\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 &amp; \u03a4\u03b5\u03c7\u03bd\u03bf\u03bb\u03bf\u03b3\u03af\u03b1\u03c2 \u0391\u0395\" \/>\n<meta property=\"article:published_time\" content=\"2025-05-21T09:09:12+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-24T12:59:51+00:00\" \/>\n<meta property=\"og:image\" 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