The Rare Disease Association of Greece (ERA) introduces, for the first time in Greece, two innovative tools that mark the essential support and comprehensive information of the Rare Disease community.
Access and Permissions Guides
The guides “Guide to Accessing Therapies and Orphan Drugs for Rare Diseases” and “Guide to Rights and Social Benefits for People Living with Rare Diseases” constitute a comprehensive and structured source of information, eliminating the confusion and complexity caused by fragmented information.
The “Guide to Accessing Therapies and Orphan Drugs” was developed in collaboration with the Ministry of Health, the National Organization for Medicines (EOF), the National Organization for Healthcare Services Provision (EOPYY), IFET S.A., and the Hellenic Market Access Association (ELEMA), offering a clear mapping of the process for accessing innovative therapies and orphan drugs.
The “Guide to Rights and Social Benefits”, created by specialized Social Scientists with the support of the Ministry of Health and OPEKA, provides valuable information on the social benefits and rights concerning patients with rare diseases and their families.
Although the guides address the specialized needs of rare disease patients, their value extends to the entire patient community, as they include useful information and tools that promote equity and support within the healthcare system, creating a positive impact on a broader scale.
As dynamic tools, the guides reflect the applicable procedures and regulatory framework at the time of their publication (June 2024) and will be adapted and updated in line with any legislative changes.
